May is Friedreich Ataxia (FA) Awareness Month and Saturday, May 17 is FA Awareness Day. FA is a progressive neurodegenerative disorder that affects ~15,000 people worldwide. For more information about FA, visit Friedreich's Ataxia Research Alliance (FARA), National Ataxia Foundation (NAF), or Friedreich’s Ataxia News.
To help raise further awareness and honor those living with FA along with their caregivers, Francesco talks with renowned FA patient community leader and author, Matt Lafleur. Hear how Matt focuses on bringing boundless positivity to those with FA and the people who care for them. Discover more about Matt through his column, "Little Victories", his Friedreich’s Ataxia News feature Matt's Journey, his interview in The New York Times, and his children’s book “Prof. Hong Explores Friedreich’s Ataxia.”
